In the Foust House
28 Apr 2011 Leave a Comment
Jax had his 42nd week of treatment today…..sheesh!! This month he has done really well. He has eaten better, felt better, and is learning a whole lot. However, the last two days have been pretty rough. I can always tell when he starts to feel bad b-c he is super clingy, whiny, doesn’t eat well, and starts to take 4 1/2 hr naps. Last night was especially tough. He did not sleep well at all. He talked and moaned and cried. I haven’t had to go in his room in the middle of the night since the beginning of this whole journey and last night brought back A LOT of memories….not so good ones. So today when I had to wake him up to go to the doctor, it broke my heart. Jax’s sleep is very important to me because I know his body needs it in order to heal. The ride to the clinic was a little rough and the visit today was as well. Jax was just not feeling himself at all. He was running a low-grade temp and had a runny nose. In spite of not feeling well, they still gave him his chemo. We also found out today that one of Jax’s oncologists, Dr. Momin, is leaving the clinic in order to stay home with her 6 month old baby….totally understandable. She will be truly missed, however. After treatment we headed home and Jax actually fell asleep in the car. That NEVER happens. He was exhausted!!! Jax is now still running a low-grade temp and if it does not start to go down we will have to head to the ER. Because of Jax’s liver disease, he is not allowed to have Tylenol or Motrin so we have to wait it out. And because he has a port, we have to bring him to the ER anytime he runs a fever of 100.5 or higher. Sooooo, please pray healing over our little biscuit. He is just feeling really yucky and it breaks my heart for him. Also, the rest of our family could really use your prayers as well. I am EXHAUSTED!!! Emotionally and physically. I just don’t seem to have the energy to put into the older kids because Jax requires so much of me. This REALLY effects Bella. Her love language is quality time and she has a really hard time when she doesn’t feel like she’s getting enough attention. Poor Maddox just gets lost in the shuffle sometimes. He is just so content and chill but I NEVER want to get comfortable with the fact that he doesn’t “require” as much of me. I am trying to learn how to let laundry go, not cook dinner every night, or miss a work-out in order to spend more time with them when possible. VERY HARD FOR ME!!! Soooo, I will stop having my pity party now but I have had so many people tell me how strong I am and I SOOOOOO appreciate that. However, I do struggle….trust me. We appreciate all of your sweet comments, cards and phone calls. Sometimes, it’s what gets me through the day and I am so thankful for each one of them. I will keep everyone posted on the fever situation but from the sounds that are coming from the monitor, it’s gonna be a long night.
